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Category: Volume 06 Issue 08 August 2018
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Title: Evaluation of Quality of Life in Juvenile Idiopathic Arthritis Using Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Authors: Hussein Z., El Deriny G.F, Zohni S.M, Ismail M.A

 DOI:  https://dx.doi.org/10.18535/jmscr/v6i8.118

Abstract

Objective: To evaluate the quality of life in children diagnosed with JIA using juvenile arthritis multidimensional assessment report (JAMAR)

Methods: The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) includes 15 parent or patient-centered measures or items that assess well-being, pain, functional status, health-related quality of life, morning stiffness, disease activity, disease status and course, joint disease, extra - articular symptoms, side effects of medications, therapeutic compliance, and satisfaction with illness outcome. The questionnaire was applied to 44 children who attended the pediatric rheumatology clinic in Alexandria University Children’s hospital, Egypt. The questionnaire was repeated to all patients after 6 months

Results: Results of this study revealed that the JAMAR questionnaire was valid, reliable and sensitive to change of the disease activity The JAMAR provided thorough information for the study patients about recent medical history and current health status.

Conclusion: Integrating patient reported outcome measures into standard clinical practice is feasible and applicable. Development of the JAMAR introduces a new approach in pediatric rheumatology practice. This new questionnaire may help enhance the quality of care of children with JIA.

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Corresponding Author

Ismail M.A

Department of Pediatrics, Alexandria University, Egypt

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